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A List of My Demands…

I demand a conscious silence.

I demand peace of mind.

I demand protection from the elements.

And I demand the chance to protect my health and my body.

I owe it to my very being to find love for my own self first, to set an example for those

that will come after me.

I demand happiness and to push any obstacle out of my way to accomplish that.

I demand respect. The kind I have both earned for myself, and the kind that just naturally

comes from being birthed a human and woman.

I demand love. The kind I deserve and can also provide. The kind of love that changes

how I view everything in this big world. The kind that I can be myself with.

I demand a place in this world. For myself and for my family, and I stand ready to fight

for it.

I demand understanding. Understanding that if I portray a thought process different than yours, you will not shake it in me. An understanding that as you stare into my eyes and sense an emptiness, you know not the measures of things I have been through, nor that I am battling as we exchange looks. An understanding that possibly in that moment, I am hanging on by the last thread that I have more than likely graciously borrowed from someone who felt generous enough to offer it up to me.

I demand self-worth. A world that acknowledges my beauty as a woman, my strength as a mother, and my value as a fellow human.

I demand unapologetic boundaries. Last and definitely not least, I ultimately place my mental health, my wellbeing, my self-love, and the care of my children above all and everything. If at any time, or in any place, any of these become threatened or weighted down, I reserve the right to distance myself, children, and soul from the weight.

I demand my demands to be met. And if they are not, I demand a removal of the obstacle.

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A Mother’s Cry..

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My whole world has become complacent lately. Feeling like a machine with my heart renewed on an assembly line by a conveyor belt each day only for it to be broken into pieces once again. Broken heart after broken heart. I am a born again living dead girl. Floating around preparing myself for the next jab. A pride carried from a naive heart who only felt she had gotten at least one thing right in her fragile, brittle life.

Take that molded rug right out from under me. Over and over again until the bends of these knees that have prayed for you shatter in two. While I lay here, a puddle of poison and battered, I will finally admit to myself that it was a facade.

With every strength and effort in me to break a cycle and do it better than those who had come before me, I have seemingly failed. I lied to myself and continue to do so. And since that was the only good that was ever in me, I’m emptied of a want to. I am hollowed with a who am I. I am robbed of a purpose.

Convinced now that I everywhere I turn, everything is polished before I get there, and rusted out by the time I pass through.

Damaged goods. Homeless.

How does one who is broken time and time again, die inside, and then awaken again to die once more but never stay dead?

When I said I’d take the pain of this world off of you if I could, I never knew or imagined that it would mean that I would take not only the pain, but the weight of every ocean, the blame, and every ounce of hate and resentment that had passed through the vicinity of us.

But even so, torn limb from limb, I steady myself to stand once again with half the sun rising on my beaten face, to take my place on that front line once more.

A failure badly bruised, mentally paraplegic, and dead but still breathing; prepared without hesitation to do it again. And again.

A maternal love is unfailing, unwavering. At least that is what it’s supposed to be. And maybe you’ll never see it in me, or find any sense of pride in my silent and suffering efforts, but I will press on in it in hopes that in the end, you will awaken to the knowing of how profound the possibility is of someone, who is so broken, numb, and beat down, could still love someone else and fight for someone else with an unfathomable, immeasurable, unfaltering, unconditional, and powerful will to live again, and also still love someone else with an entirety and unbreakable spirit, while unable to look at her own self in the mirror.

Live fully, my sweet joy. Live powerfully as my favorite chapter. I’ll be here fighting it for us. And always loving you out loud and working through the dead in me silently.

And even when you didn’t think I cared, or don’t think I care, I have loved you and will love you with every fiber and every second of my existing…

Posted on by thetruthandtheliesofthejourney · 2 Comments

I’d Be Your Wife

I am floating in the winds of my mind,

and swimming in the waters of our time.

I am dreaming in the daydreams of all of our plans,

Focusing in on what matters in each moment, and loving all that I can.

You are the brightest piece in my puzzle board,

And the smile my heart prescribes.

I yearn for each and every memory made,

And how our beautiful future fills my insides.

Coffee tastes different now,

And each meal I prepare is prepared with so much love.

I want to pinch myself every morning,

And each and every time we laugh and talk is a gift from above.

Every time our hands touch, I am reminded of how grateful I am,

That no matter what’s going on around us, I am confident that this is God’s plan.

My heart is more open than it ever has been before.

I am constantly in thought of all of the adventures I want to take with you,

So much so, that my imagination just soars.

I want to spend all my years with you,

the good and the bad, through triumphs and the strife.

And through it all, in a perfect world, with nothing in our way,

Nothing would make me happier than to do all of this as your wife.

Life throws every curveball it can at us, trying to take us to the ground,

But no matter what my love, here we are still fighting…

still loving fiercely…

standing strong..

And still around.

So, I devote myself fully to you,

And you to me.

And in this life, we are partners always,

First and foremost,

Fully trusting,

Finally living free.

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Wade In These Waters -Pt. 2

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I’ve been up and down on finding a whole new level of positivity. This is a whole new journey I am on, and it’s one that did not start off with good news or a positive look for the future.

I would give anything to find my circumnavigation for this nightmare. A way to pull the ultimate trick move and have the final prize be a clean health slate. The ultimate 2nd chance of a lifetime. But this is my reality. I constantly have to remind myself to stay focused mentally. Because right now, unfortunately, if I lose focus for even a few seconds and let the sadness of my health creep in, it will cause such a negative mental health domino effect.

On top of fighting this health battle, I have never felt more worthless than I do currently in my life. I spend all of my time, even when I feel at my worst, waiting on everyone else hand and foot. I am by nature, a natural caregiver. It’s just something I do.

I don’t have a job that pays a paycheck. My life up to this point has been a flop, if I am being completely honest. The only thing I truly have to show for anything I have done in my life, and that I have ever accomplished, is my daughter, who is so incredible, and an incredibly frustrating Criminal Justice degree that did more harm financially in my life than it ever did helping me.

Now that I am not well, I don’t know how I am going to work. I don’t know how I am going to make it. Yesterday, I went to the store to get a rotisserie chicken for dinner and when I got in line to check out, I had forgotten that food stamps (yes I currently have to get food stamps) do not cover hot food from the deli. I then proceeded to have to count $7.00 in change out at the register out of my zip lock bag I had been saving change in, to be able to take the chicken home. Very low moment indeed. It gets better. I then had to drive home, count more change, and go back to the store and pay for tampons and pads with change as well. Because every woman knows that no matter how bad your health already is, your female parts have no boundaries.

I’ve always found a way to make things work. I’ve never felt as though I needed anyone, even when I feel at my most rock bottom times. It’s because I’ve spent the bulk of my life with walls I purposely built around me protecting me.

A lot has changed over the past 5 years however. I really started working on myself and doing a lot of hard work mentally the most. I’ve let more people in than I could have ever dreamed I would have. And in turn, I let people go that had been in my life for what seemed like forever and that I could have never fathomed parting from before. It’s been a trying yet, freeing experience. I have, for the first time ever, began to embrace people and the love that they offer. And I have truly and wholeheartedly learned to love people exactly where they are at. Anyone who knows me knows that I have always been a huge touch-me-not. However, after doing some soul searching, and learning to pick and choose battles in my own life, and with my daughter, who struggles with mental health issues, I learned that some things are just not worth hanging onto. It has taken me years to fully achieve and appreciate the depth of that kind of realization. Now, I love other people’s ability to love. And I have learned to truly love them. Even when it’s hard to.

If I would have known that forgiveness was such a huge cure all for so many things in my life years ago, I could have saved myself so many years of ruination. I’m sure I can get more into that in another entry one day. Most of all, when you get such a life-threatening diagnosis, things you used to think were so important, or pain you had hung onto for so long unwilling to let go of and forgive for, just seems so small now. I am lucky enough to had already been working on forgiveness and loving in my life for a few years now. I had to. If I am being honest, I spent most of my life being so angry. I mean so angry that everything made me angry. I expressed every emotion with anger. And I plowed through years and years, destroying everything in my path. I wish I could go back now. I am free of it. I never, in a million years, would have ever thought I would be able to say it.

Today is one of my bad days as far as my health. In a support group I have recently joined with others who have similar diagnosis’s as mine, they advise that there will be bad days; and that on those days, you should rest so you’ll be prepared to enjoy your next good day. I’m trying. And looking forward to my next good day. I cried today though. I want to walk the driveway. Simple right? No. Not for me, at least not right now. I also cried because I hit a bird on the way taking my daughter to school this morning. I’m honestly quite unpredictable right now lol. But I’m not giving up, and that’s what is most important in my eyes.

I’m fighting for my personal odyssey. My own eventful and adventurous journey. I hope to one day look back and say that I visited this nightmare portion of life, and that it was my sojourn in this time for the greatest of lessons…… humility.

Posted on by thetruthandtheliesofthejourney · 2 Comments

Wade In These Waters -Pt. 1

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Feeling numb in the way that life is going. I feel like my life is a train, but I am stuck on the caboose, and no one is driving it anymore. I feel used up in a way that is so lonely. And I’m fighting every single day to remain optimistic and faith-filled about how I feel about the future. I just simply want what everyone else wants in the end…..hope.

I am closing my eyes, wading into these unknown waters. You can spend years of your life contemplating what you’re gonna do with each portion of it. Then, out of nowhere, you get news that makes you rethink everything. You question how far ahead you should plan, or if you can plan at all as far as career because of your health. Yet, here I wade, deeper and deeper.

There’s a drive in me. I’ve noticed that it comes and goes, depending on my mood. One minute, I’m unstoppable in my mind with what I plan on accomplishing going forward, no matter the obstacle. Then, all of the sudden, I feel brought down to my knees with mourning for my own self. This sadness comes over me and it becomes everything I can do to not just give up.

My lungs feel as though they are turning to stone. As if I turned a corner and stared straight into the eyes of Medusa herself. Or could it be possible that I have became instantly related to the tin-man? Only as a distant cousin, and there is no oiling up for me…

I have been so many different dark and horrible places in my life. However, this is by far the scariest I have ever felt. I try to focus the most on keeping faith and optimism. But unfortunately, I am still a human. I fear and worry.

When you’re a little younger, you think you have all of this time to stop doing the bad things you’re doing and start taking care of yourself. I call it the “I’ll do it tomorrow” mentality. I am only 36, almost 37. That’s quite young. It matters not however. I’ve been diagnosed with stage 3 COPD this past Friday. Specifically, my doctor informs me that if I don’t quit smoking, within months, I’ll be on fulltime oxygen. And I’ll be on a lung transplant list before I am 40.

The feeling that came over me while that doctor was saying these hard facts gave a new definition to shock in my book. It turns out, there is no time to waste. Having the “I’ll do it tomorrow” mentality can be absolutely life or death.

You begin to look back on each and every opportunity that you had to change your ways, or your situation. Even times when you could feel your body beginning to change in a negative way. Yet, you ignored it. Or you think back on the hundreds of times your grandparents lectured you about certain things, but you just rolled your eyes as you searched for the exit door closest to you.

But, I regress. Thinking back doesn’t change where you’re at now. So, you must focus on the hard work ahead of you. You must not dwell on anything negative. Especially those particular things that will absolutely get in the way and hinder the process towards a possible recovery and/or extension of life.

So, I write, as I always have. And I will continue to. Being as raw and open and honest as I possibly can, sharing my progress and even the rawness of things if they get worse, God forbid. And I won’t give up.

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Remnants of the Past, Embracing the Now

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I saw clearly the remnants of forgotten cigarette butts in the scattered rocks as we drove through to get that coffee. I was thinking to myself how many years some of those butts have been buried there, long after their victims have been gone. I dig into things and overthink if I’m not careful.

The voices of aggravation on the other end of the speaker from a person just there to do a job so they can pay the light bill that’s been way over-priced since the frigid dropping of the temperatures. Or the teen coming up in age, just working for that extra pocket cash, definitely not wanting to spending it on anything except the material things they feel deprived of. All thrown into one building working and serving the masses.

I feel all of this as I pass through the line, my daughter in the passenger seat. I feel nostalgic. Fully aware of everything in every moment. Extremely grateful for each and every second. Even though we recently had a therapy appointment and have to go back next week because the therapist is concerned for my daughter and is setting her up with psychiatry. Still, I am so grateful. Unable to allow myself to feel anything else because of the chaos that has tried to take me down for so long. I’m on the front lines of a battle like no other. And for anyone who knows me, there have been so many battles up to this moment. They seem like a staple for every chapter that I am constantly trying to break free from.

I am doing today with a smile on my face. Because I choose to. Even through each moment of heaving for air. Because I want every moment. I want every second.

I just swopped places with my daughter and now I watch as she drives. For a moment, I see my little girl. Her little smile. Her giggle. Except for this current version just yelled shit as another car got in her lane. lol. Still, I see her. I remember every single moment. She’s growing up so quickly and I am here for it. She’s 16, and will get her driver’s license in a couple of weeks. 2 years left in school, and the future awaits her.

I want to be there to see the incredible things she is going to do. I want to hold grandbabies, and see that’s mother’s love in her eyes. I want to see her do better than I did. I’ve never been that parent that said, “I hope your child is just like you.” I wish a whole different life for her. I wish peace for her and her children. And every dream come to life.

I’ve also never been that parent who says, “No one will ever love you as much as I do, or the way that I do.” That’s crazy. This world can be incredible. I wish more for her. I pray she finds someone that loves her bigger in ways that are more than a mother’s love can surpass. And I pray that they give her the world she deserves, which is bigger than anything her or I could ever imagine. I’ve tried so hard to work over these mountains so I could be someone she could be proud of and even maybe one day, would want to take a lesson from.

But lately, I have realized that I want her to be completely and totally herself. A whole new chapter. Breaking the cycle of this chaos. She is so incredible and adventurous. That combination in life can be so exciting and limitless. And as her parent, I am excited for all of these adventures.

We took the long way home, stopping too long at stop signs of course. The whole time, I’ve grasped the oh crap bar for my life. Even though in reality, she’s a good driver. And she has always picked up on everything so quickly. I just can’t let go and give control to anyone, and it’s something I am still working on. It’s something that frustrates her greatly.

We arrived home. Spring is in the air and I soaked up every single second of what was left of the daylight on the porch. I could hear my daughter singing in the basement in her room so I snuck to her window and started to sing with her, giggling. I couldn’t help but peak in on her. As teens, they don’t come out of their lairs as often as we would like them to. So, honestly, every chance I get to come up with an excuse to peak in on her or tell her I love her, I do it. Life is so short. I want her to know it. That I love her. Because I love her so big.

The grass is turning bright green again. I try and focus on that in this moment, as the thoughts of upcoming specialist’s follow-ups for my many ailments come creeping up on me in the coming days. I’ve spent a lot of time pushing back fear and trying to live in faith. It’s hard sometimes, if I am being honest. Some of the answers I get could change my entire world, or my daughter’s entire world, or both. So, each day, I am just living in every moment. Loving as hard I can, harder than I ever have. I am accepting hugs, which I have always struggled with as a touch me not and never accepted before. Even the closest people to me have jokingly asked permission before hugging me in the years up till now. However, in this new chapter in my life, I want love in every form. All of it. And I want to give it back, in every form. Freely and wholeheartedly.

We can’t change any bad or good news we get. We can’t change how long or short the time we have here on this earth is. And we can definitely not change the yesterdays that got us to this very moment. Tomorrow, no matter what the day brings, I will embrace what comes, with my everything. And gather all of the remnants to take with me, wherever I may go…

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Faith and Forgiveness

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I feel adrift in this crazy world,

Never knowing what’s coming next.

Being pulled in every direction,

Mostly feeling vexed.

I often feel as if I am on the outside looking in,

Never making up for things I’ve done,

Never feeling a win.

But there’s a hope within me,

And a love that grows each day.

A light like sunshine,

That floods in to extinguish the gray.

I’m clinging to an optimism,

that maybe it’s not too late.

And a prayer that after forgiveness,

I can start with a clean slate.

I’m feeling undeserving,

In the most vulnerable way.

The fight is on for survival,

The fear must subside today.

On my knees begging,

For the chance to show some change.

Whatever I have to do,

And fully prepared to fully rearrange.

So, I’ll walk through this door,

with faith instead of worry.

For once try and slow my mind down,

And not be in such a hurry.

Laying my insides out,

And stop living for everyone else.

Fighting away a doom that makes me want to shout,

Finally placing procrastination on a shelf.

No matter the outcome,

I’m still here in the now.

Thankful for the blessings,

And not questioning the why and the how.

I will love til my last breath,

asking everyone to not be sad.

So incredibly grateful for family and lessons,

Not spending another single second mad.

I encourage you to be raw and open,

And to never waste each chance.

And to never give up, no matter what,

Life is fleeting, love is priceless, and our time here on this earth one big and beautiful dance.

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